Helpful Organizations
General Cancer Information and Assistance
American Cancer Society
800-ACS-2345
1599 Clifton Road N.E.
Atlanta GA 30329
Website: http://www.cancer.org
The American Cancer Society, with offices nationwide, has a variety of services for cancer patients and their families and friends. Through the Ostomy Rehabilitation Program, Look Good...Feel Better, What About Me? and I Can Cope, they provide direct assistance to patients and their families, who need help with the physical and emotional problems they face. Also available are a variety of pamphlets, brochures and booklets providing information. Materials are available in Spanish and Chinese in addition to English.
Cancer Care, Inc.
275 Seventh Avenue - 22nd Floor
NY, NY 10001
212-712-8400, 800-813-HOPE (800-813-4673)
Website: http://www.cancercare.org
E-Mail: info@cancercare.org
Fax: 212-712-8495
Cancer Care Inc. is a nonprofit social service agency that assists families and patients in coping with the emotional, psychological, and financial consequences of cancer. It has a toll-free counseling line and teleconference programs providing assistance to individuals and families. Information about cancer and treatment, financial counseling, financial assistance and referrals to other support services are also available.
Chemocare.com
Website: http://www.chemocare.com
Chemocare.com is designed to provide cancer patients with reliable information and empowerment to make informed choices about thier treatment. The site offers extensive details on chemotherapy and its side effects in patient-friendly language. .
Oralchemo.org
Website: http://www.oralchemo.org
The online oral chemotherapy resource for patients and families. This information is not intended for residents of the USA.
National Institutes of Health Cancer Information Service/PDQ
1-800-4-CANCER
Websites:
http://cancernet.nci.nih.gov
http://www.cancer.gov/newscenter
The National Institutes of Health Cancer Information Service/PDQ provides a nationwide telephone service with specially trained personnel who can provide up-to-date, understandable information about cancer. Their offices serve specific geographic areas and can provide information about services available in each area. They offer a wide variety of free publications, many in both Spanish and English, including What You Need to Know about Cancer of the Colon and Rectum. They can also provide a list of cancer centers and information about clinical trials.
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Colorectal Cancer Information
American Cancer Society
800-ACS-2345
1599 Clifton Road N.E.
Atlanta, GA 30329
Website: http://www.cancer.org
The American Cancer Society, with offices nationwide, has a variety of services for cancer patients and their families and friends. Through the Ostomy Rehabilitation Program, Look Good...Feel Better, What About Me? and I Can Cope, they provide direct assistance to patients and their families, who need help with the physical and emotional problems they face. Also available are a variety of pamphlets, brochures and booklets providing information. Materials are available in Spanish and Chinese in addition to English.
American College of Gastroenterology
301-320-1200
Fax: 301-263-9025
6400 Goldsboro Road – Suite 450
Bethesda, MD 20817
Website: http://www.acg.gi.org/
American College of Gastroenterology provides physician referrals in your area. Through affiliation with the National Digestive Diseases Clearinghouse, at 301-654-3810, the ACG provides patient brochures on a variety of diseases affecting the gastrointestinal system, including colorectal cancer.
American Gastroenterological Association
4930 Del Ray Avenue
Bethesda, MD 20814
301-654-2055 Fax: 301-654-5920
email: member@gastrol.org
Website: http://www.gastro.org
American Society of Colon & Rectal Surgeons
847-290-9184
Fax: 847-290-9203
85 W. Algonquin Road, Suite 550
Arlington Heights, IL 60005
Website: http://www.fascrs.org
E-mail: ascrs@fascrs.org
This society offers a variety of brochures including several on colonoscopy and colorectal cancer. They can also provide listings of colorectal surgeons in your area.
CCA's Revolution Health Web Site
Website: http://www.revolutionhealth.com/pages/colon-cancer-alliance
CDC’s Screen for Life: National Colorectal Cancer Action Campaign
Division of Cancer Prevention and Control
National Center for Chronic Disease Prevention and Health Promotion
Centers for Disease Control and Prevention
4770 Buford Highway, NE, MS K-64
Atlanta, GA 30341-3717
Website: http://www.cdc.gov/cancer/screenforlife
E-mail: cancerinfo@cdc.gov
This program is run by the Division of Cancer Prevention and Control (part of the Centers for Disease Control’s prevention and health promotion efforts.) The program offers a variety of materials about colorectal cancer and screening options. Screen for Life also offers several Public Service Announcements targeting the general public about colorectal cancer for television, radio and print.
Collaborative Group of the Americas on Inherited Colorectal Cancer (ACG-ICC)
847-290-9184
Fax: 847-290-9203
85 W. Algonquin Road, Suite 550
Arlington Heights, IL 60005
The ACG-ICC can be contacted through the American Society of Colon and Rectal Surgeons. This group provides a listing of hereditary colon cancer registries and information on clinical and chemoprevention trials.
Colorectal Cancer Coalition (C3)
202-244-2906
4301 Connecticut Avenue NW, Suite 404
Washington DC 20008
Website: http://www.c-three.org
C3 pushes for research to improve screening, diagnosis, and treatment of colorectal cancer; for policy decisions that make the most effective colorectal cancer prevention and treatment available to all; and for increased awareness that colorectal cancer is preventable, treatable, and beatable.
Foundation for Digestive Health and Nutrition
301-654-2055
Fax: 301-222-4010
4930 Del Ray Avenue
Bethesda, MD 20814
AGA Website: http://www.gastro.org
E-mail: webinfo@gastro.org
FDHN Website: http://www.fdhn.org
E-mail: info@fdhn.org
Foundation for Digestive Health and Nutrition (FDHN), created by the American Gastroenterological Association (AGA), develops funds for research to explore causation, prevention, improved treatments or potential cures for digestive and liver diseases, and conducts public education initiatives supporting its mission. AGA also provides listings of gastroenterologists and hepatologists in your area.
The Jay Monahan Center for Gastrointestinal Health
1-212-746-WELL (9355)
Website: http://www.monahancenter.org
E-mail: monahancenter@nyp.org
The Jay Monahan Center for Gastrointestinal Health is a world-class gastrointestinal cancer and wellness center. The Monahan Center was founded in March 2004 in memory of attorney Jay Monahan, in large part, through the efforts of his wife, Katie Couric, and the organization she co-founded, the Entertainment Industry Foundation’s National Colorectal Cancer Research Alliance. The Monahan Center serves as a unique model of coordinated and compassionate care, dedicated to prevention, treatment, research, and public education in gastrointestinal cancers, including colorectal cancer. The Monahan Center provides a comprehensive, educational website as well as ongoing seminars and events for patients and families, the general public, and health professionals.
United Ostomy Associations of America, Inc.
1-800-826-0826
Website: http://www.uoaa.org
E-mail: info@uoaa.org
The UOA consists of over 400 chapters across North America and provides a toll free number to request assistance. Available are their quarterly newsletter, "The Ostomy Quarterly," patient visiting and support, and a variety of publications for the rehabilitation and support of ostomates.
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Patient and Caregiver Support
American Cancer Society
800-ACS-2345
1599 Clifton Road N.E.
Atlanta, GA 30329
Website: http://www.cancer.org
The American Cancer Society, with offices nationwide, has a variety of services for cancer patients and their families and friends. Through the Ostomy Rehabilitation Program, Look Good...Feel Better, What About Me? and I Can Cope, they provide direct assistance to patients and their families, who need help with the physical and emotional problems they face. Also available are a variety of pamphlets, brochures and booklets providing information. Materials are available in Spanish and Chinese in addition to English.
Cancer Care, Inc.
212-712-8400, 800-813-HOPE (800-813-4673)
Fax: 212-712-8495
275 Seventh Avenue – 22nd Floor
New York NY 10001
Website: http://www.cancercare.org
E-mail: info@cancercare.org
Cancer Care, Inc. is a nonprofit social service agency that assists families and patients in coping with the emotional, psychological, and financial consequences of cancer. It has a toll-free counseling line and teleconference programs providing assistance to individuals and families. Information about cancer and treatment, financial counseling, financial assistance and referrals to other support services are also available. The Helping Children Cope program offers resources to help children deal with cancer in a parent or close relative.
Cancer Hope Network
877-HOPENET (877-467-3638), 908-879-4039 (NJ Residents)
Fax: 908-879-6518
2 North Road, Suite A
Chester, NJ 07930
Website: http://www.cancerhopenetwork.org
E-mail: info@cancerhopenetwork.org
One-on-one support for cancer patients and their families by trained volunteer cancer survivors.
Colon Cancer Discussion List Association of Cancer Online Resources
212-226-5525
173 Duane Street
3rd Floor
New York, NY 10013-3334
Website: http://www.acor.org/colon.html
The Colon Cancer Discussion List is provided by Association of Cancer Online Resources, Inc. (ACOR), a non-profit organization that provides information and support to cancer patients and those who care for them through the creation and maintenance of cancer related Internet mailing lists and Web-based resources. On the Colon Cancer Discussion list about 600 people regularly answer questions, exchange information and provide support to those dealing with colorectal cancer.
Fertile Hope
(888) 994-HOPE
65 Broadway, Suite 603
New York, NY 10006
Founded in October 2001, Fertile Hope is a national, nonprofit organization dedicated to providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility.
Gilda's Club
1-888-gilda-4u
212-647-9700 Fax: 917-305-0549
322 Eighth Avenue – Suite 1402
New York, NY 10001
Website: http://www.gildasclub.org
Provides social and emotional support to people with cancer, their families and friends. Services are free of charge. Offers support and networking groups (including a networking group for colorectal cancer), lectures and workshops, and social events. Gilda's Club has locations across the U.S., and in Toronto and Montreal.
National Coalition for Cancer Survivorship
877-622-7937, 301-650-9127
Fax: 301-565-9670
Orders: 301-206-9789
1010 Wayne Avenue, Suite 770
Silver Spring, MD 20910
Website: http://www.canceradvocacy.org
E-mail: info@canceradvocacy.org
An advocacy organization for insurance, employment and legal rights for people with cancer. Also available is the Cancer Survival Toolbox, a free set of six audiotapes designed to help develop tools and practices to deal with cancer diagnosis and treatment.
NCI's Facing Forward Series
888-4-CANCER
Website: http://www.nci.nih.gov/cancerinfo/life-after-treatment
The series is designed to educate and empower cancer survivors as they face the challenges associated with life after cancer treatment.
National Family Caregivers Association
800-896-3650, 301-942-6430
Fax: 301-942-2302
10400 Connecticut Ave., Suite 500
Kensington, MD 20895
Website: http://www.nfcacares.org
E-mail: info@nfcacares.org
The National Family Caregivers Association has a toll free information line, through which it provides education, respite care, counseling, and advocacy for caregivers.
The Wellness Community Executive Office
919 18th Street, NW Suite 54
Washington, DC 20006
888-793-WELL, 202-659-9709
Fax: 202-659-9301
Website: http://www.thewellnesscommunity.org/
E-mail: help@thewellnesscommunity.org
Provides psychosocial support to people with cancer and their families. There are many locations throughout the United States. Services are free of charge.
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Medical
The Jay Monahan Center for Gastrointestinal Health
1-212-746-WELL (9355)
Website: http://www.monahancenter.org
E-mail: monahancenter@nyp.org
The Jay Monahan Center for Gastrointestinal Health is a world-class gastrointestinal cancer and wellness center. The Monahan Center was founded in March 2004 in memory of attorney Jay Monahan, in large part, through the efforts of his wife, Katie Couric, and the organization she co-founded, the Entertainment Industry Foundation’s National Colorectal Cancer Research Alliance. The Monahan Center serves as a unique model of coordinated and compassionate care, dedicated to prevention, treatment, research, and public education in gastrointestinal cancers, including colorectal cancer. The Monahan Center provides a comprehensive, educational website as well as ongoing seminars and events for patients and families, the general public, and health professionals.
Partnership for Prescription Assistance
1-888-477-2669
website: http://www.pparx.org
The Partnership for Prescription Assistance brings together America's pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that's right for them. The Partnership for Prescription Assistance offers a single point of access for over 475 public and private patient assistance programs.
Cancersymptoms.org
website: http://www.cancersymptoms.org
Cancersymptoms.org is a site maintained by the Oncology Nursing Society. This site offers information about ten cancer treatment-related symptoms. Visitors to the site can access information as well as submit their questions to an oncology nurse.
Cancer Family Care
513-731-3346
Fax: 513-458-3582
Central Office
2421 Auburn Avenue
Cincinnati, OH 45219
Website: http://www.cancerfamilycare.org
E-mail: info@cancerfamilycare.org
Provides patients and their families with information on various medical technologies.
American College of Radiology
800-ACR-LINE (800-227-5463)
703-648-8900
800-227-7762 (Publications)
Fax: 703-648-9176
1891 Preston White Drive
Reston, VA 20191
Website: http://www.acr.org
E-mail: info@acr.org
E-mail (publications): pub-sales@acr.org
Provides publications and educational material with information about current developments in diagnostic radiation and radiation oncology.
American Society of Therapeutic Radiation and Oncology
800-962-7876, 703-502-1550
Fax: 703-502-7852
8280 Willow Oaks Corporate
Fairfax, VA 22031
Website: http://www.astro.org
ASTRO provides oncology and radiation oncology information to promote better care for patients.
American Society of Clinical Oncology
703-299-0150
Fax: 703-299-1044
1900 Duke Street – Suite 200
Alexandria, VA 22314
Website: http://www.asco.org
E-mail: asco@asco.org
Provides information on treatment choices
The Chemotherapy Foundation
212-213-9292
Fax: 212-213-3831
183 Madison Avenue, Suite 403
New York, NY 10016
Provides patient information booklets on clinical research into the diagnosis and treatment of cancer.
Needy Meds
215-625-9609 – Administrative Office
Fax: 419-858-7221
120 Western Avenue
Gloucster, MA 01930
Website: http://www.needymeds.com
E-mail: info@needymeds.com
Provides information on pharmaceutical company programs that help patients obtain the medicines they need.
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Transportation and Housing Assistance
Corporate Angel Network
866-328-1313
914-328-1313 Fax: 914-328-3938
Westchester County Airport, 1 Loop Road
White Plains, NY 10604
Website: http://www.corpangelnetwork.org
E-mail: info@corpangelnetwork.org
Provides free plane transportation for cancer patients undergoing treatment at recognized cancer treatment centers.
LifeLine Pilots
800-822-7972, Fax: 800-822-7969
309-697-6282
Byerly Terminal, Suite 302
Greater Peoria Regional Airport
6100 W. Dirksen Parkway
Peoria, IL 61607
Website: http://www.lifelinepilots.org
E-mail: missions@lifelinepilots.org
Provides free air transportation on small, private aircraft for health care and other humanitarian needs.
National Patient Air Travel Center
Mercy Medical Airlift
800-296-1217 (in U.S.), 757-318-9145 elsewhere
4620 Haygood Road, Suite 1
Virginia Beach, VA 23455
Websites: http://www.patienttravel.org
E-mail: mercymedical@erols.com
Provides patients with referrals for charitable and discounted medical air transport services.
National Association of Hospital Hospitality Houses, Inc.
800-542-9730, 828-253-1188
Fax: 828-253-8082
P.O. Box 18087
Asheville, NC 28814
Website: http://www.nahhh.org
E-mail: helpinghomes@nahhh.org
Provides information on away-from-home lodging for patients and families.
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Insurance/Financial/Legal Assistance
Cancer Care, Inc.
212-712-8400, 800-813-HOPE (800-813-4673)
275 7th Ave. - 22nd Floor
New York, NY 10001
Website: http://www.cancercare.org
E-mail: info@cancercare.org
Cancer Care, Inc. is a nonprofit social service agency that assists families and patients in coping with the emotional, psychological, and financial consequences of cancer. It has a toll-free counseling line and teleconference programs providing assistance to individuals and families. Information about cancer and treatments, financial counseling, financial assistance, and referrals to other support services are also available. The Helping Children Cope program offers resources to help children deal with cancer in a parent or close relative.
Colorectal CareLine
1-866-657-8634
Website: http://www.colorectalcareline.org
Patient Advocate Foundation's Colorectal CareLine is a patient/provider hotline designed to provide assistance to patients who have been diagnosed with colorectal cancer and are seeking education and access to care. The Colorectal CareLine also offers financial aid through the Financial Aid Fund for those diagnosed with colorectal cancer who need financial assistance.
HealthWell Foundation
800-675-8416
fax:800-282-7692
P.O. Box 4133
Gaithersburg, MD 20878
Website: www.healthwellfoundation.org
E-mail: info@healthwellfoundation.org
The HealthWell Foundation is a 501(c)(3) non-profit organization established in 2003 to address the needs of individuals who cannot afford their insurance copayments, premiums, coinsurance, or other out-of-pocket health care costs.
National Patient Advocate Foundation
National Managed Care Resource Network
800-532-5274
Fax: 757-873-8999
753 Thimble Shoals, Suite 200
Newport News, VA 23606
Website: http://www.patientadvocate.org
E-mail: help@patientadvocate.org
The National Patient Advocate Foundation and the National Managed Care Resource Network provide legal counseling and referral services for patients denied insurance, facing employment discrimination and/or in need of support in negotiation for public assistance programs at the state and national level. Also available are managed care consultants to assist in clarification of coverage and billing questions.
National Coalition for Cancer Survivorship
877-622-7937, 301-650-9127
Fax: 301-565-9670
Orders: 877-622-7937 or 301-650-9127
1010 Wayne Avenue, Suite 770
Silver Spring, MD 20910
Website: http://www.canceradvocacy.org/
E-mail: info@canceradvocacy.org
An advocacy organization for insurance, employment and legal rights for people with cancer. Also available is the Cancer Survival Toolbox, a free set of six audiotapes designed to help develop tools and practices to deal with cancer diagnosis and treatment.
National Insurance Consumer Helpline
212-346-5500
110 William Street
New York, NY 10038
Website: http://www.iii.org
Provides assistance in finding insurance coverage, information on insurance issues and a consumer complaint service.
Patient Access Network Foundation
1-866-316-PANF (7263)
PO Box 221858
Charlotte NC 28222-1858
Website: http://www.patientaccessnetwork.org
A non-profit organization dedicated to assisting insured patients who cannot afford the out-of-pocket costs associated with their treatment needs.
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Prescription Drug Assistance Programs
In order to improve patient access to drugs, several pharmaceutical companies have established drug assistance programs. See below for details on programs that provide assistance with common drugs used in the treatment of colorectal cancer.
AMGEN - Vectibix
Amgen Oncology Assistance: 1-800-272-9376
In conjunction with the recent FDA approval of Vectibix (panitumumab), Amgen announced a new program, Amgen Oncology Assistance (AOA), to assist patients who are uninsured, underinsured or unable to afford their insurance copayments. Another way Amgen is improving access to care is the Vectibix Cap that will limit total patient copayments regardless of insurance or income.
Genentech - Avastin
Genentech Access to Care Foundation
1 DNA Way, MS #13A
South San Francisco, CA 94080
(800) 530-3083
FAX: (650) 225-1366
Genentech has established the Genentech Access to Care Foundation to ensure patients have access to all Genentech marketed drugs. Since 1990, Genentech has donated $700 million of free product to uninsured patients. In order to qualify for this program, there are certain requirements including income restrictions.
Pfizer - Camptosar
FirstRESOURCE: 1-877-744-5675
Pfizer offers FirstRESOURCE to assist eligible, low income, uninsured and underinsured patients.
Bristol-Myers Squibb - Erbitux
Erbitux Patient Assistance Program: 1-800-736-0003
Bristol-Myers Squibb offers assistance to patients who receive or plan to receive Erbitux. Patients must meet eligibility requirements.
Sanofi-Aventis - Oxaliplatin
Patient Assistance Program: 1-800-996-6626
Patients who meet eligibility requirements can receive assistance with drugs as well as alternative services to help locate other avenues of help during their treatment.
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End of Life Assistance
Partnership for Caring
800-658-8898, Spanish helpline: 877-658-8896, 202-296-8071
Fax: 202-296-8352
1620 Eye Street NW, Suite 202
Washington, DC 20006
Website: www.caringinfo.org
E-mail: caringinfo@nhpco.org
Provides legal counseling and information on end-of-life decisions.
National Hospice Organization
800-338-8619, 703-837-1500
HELPLINE: 800-658-8898
Fax: 703-837-1233
1700 Diagonal Rd. Suite 625
Arlington, VA 22314
Website: http://www.nhpco.org
E-mail: nhpco@nhpco.org
Provides information and referrals to local hospitals, patient advocacy and professional education.
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